Frequently Asked Questions

If you have any questions which you cannot find the answer for below, please do not hesitate to contact our team on 1800 644 189 or 02 8051 1900, or fill out the online enquiry form.

What is Step up for Parkinson's?

When is Step up for Parkinson's?

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Step up for Parkinson's is an online, month-long personal challenge that starts on 1 May 2024 and runs through until 31 May 2024. 

Step up for Parkinson’s is all about getting active and helping to make an impact! This May, we are asking you to set yourself a daily activity goal.

You can walk, run, cycle, swim, yoga, dance.. the possibilities are endless. It’s all about getting active.

However, you choose to Step Up for Parkinson's this May you will be making a difference by raising funds for people living with Parkinson's.

Can I Step up with other people? 

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Yes, absolutely. Apart from just being really good fun, exercising in a group is a great motivator. It will help you to keep pushing yourself to reach your goal! 

You can Step Up for Parkinson's as a:
  • Family
  • Workplace
  • Parkinson's NSW Support Group
  • Parents Group
  • School

What activity can I do for Step Up for Parkinson’s?

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Step up for Parkinson's is a personal challenge that gives you the flexibility to choose your own activity.

Here are some activities from past participants:

  • Walking (an extra 1km each day)
  • Running
  • Cycling
  • Swimming
  • Yoga
  • Pilates
  • An extra work out day

If you are thinking of registering a team such as your workplace, here are some ideas:

  • Walking meetings
  • Have lunch while walking
  • Online fitness sessions
  • Jog around the block before or after work

Remember, you can always change your challenge if you feel you have set the goal to high or low. The idea is to get active.

Log in to your dashboard and scroll down and select "My Fitness Activity" to make this change.

What is the link between exercise and Parkinson’s?

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Exercise is part of healthy living for everybody. However, for people living with Parkinson’s exercise is not optional but essential.

Research shows that exercise is second only to medications for slowing down the progression of Parkinson's and can benefit with symptom management; improves gait, balance, tremor, flexibility, strength and coordination.

Activity and exercise also make us feel good, arousing the feel-good hormone dopamine.

Dopamine reduction is one of the main causes of Parkinson’s and exercise is one of the most stimulating activities for increasing dopamine production.

Dopamine plays an important role in how you feel pleasure. It’s also responsible for other processes, such as regulating heart rate, sleep cycles, mood, attention, motivation, working memory, learning, and pain processing.

How do I log my fitness activity?

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You can link your Step Up for Parkinson's personal fundraising page with Strava, Fitbit and MapMyfitness. By doing this your fitness activity will automatically sync between your fitness app of choice and your fundraising page. 

If you are not currently using Strava, Fitbit and MapMyfitness you can download them for free by visiting the App store.

Once you have installed your App of choice, create your account.  Then head over to your Step Up for Parkinson's profile page and go to the 'My Fitness Activity' tab. Here you can now connect up to the fitness app you installed. Click on the icon of the app you'd like to connect - this will ask you to login and authorise us to access your fitness account. 

You're now connected!

When using your fitness app, remember to create or start a new activity through your app and stop when you're finished each time - this will ensure your kilometres are recorded onto your Step Up for Parkinson's page.

If you prefer you can also manually add an activity through the 'My Fitness Activity' tab too on your profile page.

We have a handy step by step guide that can assist you with this, which is also available in your dashboard under 'Resources'.

Why have the colours changed?

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You may have noticed some changes this year to the Step Up for Parkinson’s colours. Parkinson’s NSW is well known for its Parkinson’s purple (or magenta as it’s known in the world of colour) and this year we decided to match Step up for Parkinson’s with our core colour.


How do I create a fundraising page?

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Simply choose GET INVOLVED and register.


Once you have completed the registration process a personal fundraising page will be created for you. 

How do I collect donations?

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Donations can be made through your fundraising page. Simply send the link to your friends, family and colleagues to sponsor your efforts.

Cash donations can be collected and deposited into the Parkinson's NSW account. 

To add a cash donation to your fundraising page please click here. 

How do I update my fundraising page?

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Login to your Step up for Parkinson's account and head to your dashboard. Click on ‘Edit my page’ and update your fundraising page. Don't forget we are here every Step of the way so reach out if you need our help 

How do I share my fundraising page on Facebook?

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You can create a Facebook fundraiser by clicking the "Create a Facebook Fundraiser" button in your dashboard! This way your fundraising from Facebook will contribute to your overall total on your page. 

Please note: These donations will appear on your Step Up for Parkinson's page as 'Facebook donation' and will not show the name of your supporter. You can view all your Facebook donations on your Facebook page to see who has supported you

Are donations tax-deductible?

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Yes, all donations of $2 or more are tax deductible.

How does Parkinson's NSW use the money raised?

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Parkinson’s NSW is a not-for-profit organisation which receives less than 3% of its operating costs from government funding. That’s just 47 cents per person living with Parkinson’s in New South Wales. 

Money raised through Step Up for Parkinson's will allow Parkinson's NSW to continue delivering essential services for the Parkinson’s community, including:

  • The 1800 InfoLine staffed by multiple Registered Nurses, a pharmacist, and a social worker.
  • Community-based Parkinson’s Specialist Nurses in regional and rural areas 
  • Two specialist counsellors
  • A network of more than 70 face-to-face and online Support Groups across the state
  • NDIS Advocacy
  • A wide variety of Parkinson’s information kits in both print and digital formats
  • Education for people living with Parkinson’s and care partners, as well as health and aged care professionals
  • A resource-rich web site, social media channels, and digital and print publications  

Thank you for supporting us to support our Parkinson’s community.

How do I thank my donors?

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Login to your Step Up for Parkinson's account and head to your dashboard. Click on ‘Edit my page’ and update your fundraising page.

Are there any prizes or rewards for fundraising?

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The first 200 people to raise $220 on their fundraising page will receive a fun pair of socks! These are an exclusive item to wear with pride as you Step Up for Parkinson's.

There is also a fundraising competition where donations received between Wednesday 22 May (12.01am) and Sunday 26 May 2024 (11.59pm) will go into the draw to win a JBL wireless noise cancelling headphones.

And as a thank you, for making a donation   your donor will also go into the draw to win a JBL wireless noise cancelling headphone for themselves. 
The total prize pool is valued at $500. 


How much does it cost to register?

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It is FREE to register and participate in Step Up for Parkinson's. You can Step Up solo, as a team, or as a workplace!

Social Media

How to share your fundraising URL on Instagram

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Sharing your URL on Instagram can be tricky.
Here are two options that you could try,
1. Add your fundraising URL to your Instagram bio
2. Create an Instagram story and use the 'Sticker Link' to share your fundraising URL

How do I join the Step Up for Parkinson's Facebook Group 

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Click here to join 

Have any questions or need help?